Apply for Social Security for your Child.
Applying for Social Security for your child who is experiencing a developmental disability can seem like an incredibly daunting task. But, your child has the potential to qualify for either Social Security Disability Insurance (SSDI) or Supplemental Security Income (SSI). The Child Disability Starter Kit may be incredibly helpful. Your local Community Developmental Disability Program will be able to assist you in this process if necessary.
Gain Developmental Disability Eligibility
Diagnosis for developmental disability diagnosis often include: mental retardation, autism, Down’s syndrome, cerebral palsy, epilepsy, and fetal alcohol syndrome or fetal alcohol effect. It is required for your child to have a developmental disability that originates in the brain for them to qualify for DD Services. If you aren’t sure if your child will qualify, you can see more information on the DD Eligibility Page. It is also helpful to talk to your Community Developmental Disabilities Program (CDDP), usually in the mental health department of each county. Being eligible for Developmental Disability opens the door to gaining services for your child.
After gaining Developmental Disability Eligibility (DD Eligibility), your child will be able to start recieving services. These supports will be determinted and approved by your Community Developmental Disabilites Program, and worked through with your case manager. Some supports include in-home care, respite care, and more. There are a variety of supports avalible at this stage in the program to help your family help your child.
Children's Intensive In-Home Services?
If your child has intensive behavioral or medical needs, you may qualify for highly individualized services from Children’s Intensive In-Home Services, or CIIS. Please keep in mind that it is necessary to first gain Developmental Disability Eligibility before considering CIIS.
CIIS is a flexible and on-going program that a child remains in until they are 18 years of age. The program offers supports that grow along with the child, and allow a child to safely remain in their own home. Anyone can refer a child to CIIS, and family income is not a factor in eligibility. However, to refer a child into the behavioral program, the do need to have their DD eligibility.
In regards to intensive behavior, CIIS will conduct an observation and interview to determine the eligibility of the child. The CIIS team will be looking for aggression, self-injury, issues with sleep and night time care, property destruction, and impulsive or dangerous behaviors. It is incredibly important to be honest with the CIIS team in order to qualify for the services your child requires.
Children who gain approval into the CIIS program have been known to receive up to $40,000 in supports yearly. The main portion of this budget is generally allocated to in-home care providers who help manage your child’s behavior, assist your child in activities of daily living, and more.
You will also receive a case manager, who helps you navigate through the program. This budget also allows you a behavior consultant, like someone from PUZZLES, to come into your home monthly and develop a plan to manage and change your child’s explosive behaviors. The behavior consultant will also provide training to both the parents and the care providers in methods that can effectively handle behaviors.
It's okay if the state doesn't pay for your child's services! PUZZLES is still ready to help privatley contracted families! But maybe you can't afford the services we offer...There's still help out there for you. Below, we've provided a variety of links and contacts of different people, items, services, and more that may be able to help you along on your journey. After all, the mission here at PUZZLES is for each and every child to live a happy life, where they are understood. Hopefully, regardless of your situation, we can help you in some little way.
Looking For State Services?
In Oregon, there are a few state paid programs for children who experience a developmental disability. Below is a rough outline of how to gain services for your child. If your child exhibits intensive medical or behavioral needs while living at home, you may qualify for a specialized family support plan that could include respite care, access to specialized behavioral supports such as a behavior consultant from PUZZLES, and potentially even sensory items for your child.
Contacts and Websites
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Above is an excellent resource for the most recent research regarding Autism.
ASI offers vocational work as well as adult services. They are also in charge of the OIS contract.
The Puzzles Shop
Coming soon is the direct link to the PUZZLES shop, full of busy bags, behavior tools, and visuals for your child.
Autism Speaks gives more information on Family services, potential scholarships, and more.